Intellectual Disabilities Resources

Below are resources for students, families, and self-advocates who are looking to learn more about intellectual disabilities. Althought the field of ID/DD continues to grow and change, we hope this collection of resources will be helpful along the journey. 

Advocacy Organizations:

www.aaidd.org
www.thearc.org
www.c-c-d.org
www.cec.sped.org
www.ndrn.org
www.ollibean.com
www.tash.org
www.vor.net
https://cerebralpalsygroup.com/

Assistive Technology:

www.resna.org
www.abledata.com
www.atnet.org
www.ataporg.org
ithare.com/guide-to-software-accessibility-for-the-disabled/

Autisum Spectrum Disorders:

www.autismspeaks.org
www.autism-society.org
www.autisminternetmodules.org

Behavior Issues:

mfba.net
www.bacb.com
www.1edweb.com/fba%20forms.htm

Disability Rights, Self-Advocacy & Self-Determination:

www.ed.gov/about/reports/annual/osep/index.html
www.selfadvocacy.com

Dual Diagnosis:

www.thenadd.org

Early Intervention:

www.medicalhomeportal.org/
www.nhsa.org
www.dec-sped.org
www.fpg.unc.edu
www.zerotothree.org
www.answers4families.org/family/special-needs
www.devdelay.org
www.med.umich.edu/1libr/yourchild/devmile.htm
www.specialeducationguide.com

Employment:

http://www.abledata.com/abledata.cfm?pageid=113573&top=16965&ksectionid=19326&stateorganizations=1 

 

Epilepsy & Seizure Disorders:

http://www.epilepsyfoundation.org

Family Issues:

Taylor's Way: A Father's Very Special Relationship with His Son
http://www.beachcenter.org
http://www.medicalhomeportal.org
http://www.php.com
http://www.cshcn.org
http://www.eparent.com

Government Initiatives:

http://www.nacdd.org
http://www.acf.hhs.gov
http://www.nichcy.org
http://www.ssa.gov/SSA_Home.html
http://www.cms.gov
http://www.aucd.org/directory/directory.cfm

Legislation & Litigation:

http://capwiz.com/cek/home
http://www.wrightslaw.com
http://www.ed.gov/about/offices/list/osers/policy.html
http://www.ed.gov/about/reports/annual/osep/index.html

Medical & Health Care Issues:

http://gucchd.georgetown.edu/64270.html
http://www.ds-health.com/clinics.htm
http://www.ms-hospitals.com/publication/?m=27891&l=1

Residential Services:

http://www.nadsp.org
http://kc.vanderbilt.edu/kennedy/tdir
/http://www.dmh.ms.gov/?s/mentalretardation
http://www.easterseals.com/site/PageServer
http://www.abledata.com/abledata.cfm?pageid=113573&top=16965&ksectionid=19326&stateorganizations=1 

School and Community Inclusion:

http://www.kidstogether.org/
http://www.wrightslaw.com/advoc/ltrs/inclusion_right_suzanne.htm
http://www.communityinclusion.org
http://www.affordablecolleges.com/resources/scholarships-students-with-disabilities/
http://www.reviews.com/online-tutoring/#tutoring_disabilities

Social History:

http://bancroft.berkeley.edu/collections/drilm/index.html
http://www.eugenicsarchive.org/eugenics/

Specific Disorders:

5p- Society [cri-du-chat syndrome]
http://www.fivepminus.org

The National Down Syndrome Society
http://www.ndss.org

The National Fragile X Foundation
http://www.fragilex.org

The National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/index.htm

Children's Tumor Foundation (formerly The National Neurofibromatosis Foundation)
http://www.ctf.org

National Organization on Fetal Alcohol Syndrome
http://www.nofas.org

Parents of Galactosemic Children, Inc.
http://www.galactosemia.org

The Prader-Willi Syndrome Association (USA)
http://www.pwsausa.org

Speech & Language:

http://www.asha.org

Statistical Information:

http://www.ed.gov/about/offices/list/osers/osep/index.html?src=mr

Teaching & Assessment Resources:

http://ericec.org/digests/e598.html
http://www.dpi.state.nc.us/accountability/testing
http://www.pluk.org/AT1.html
http://www.atia.orghttp://www.collegeofdirectsupport.com